Saturday 3 February 2018

Lots of Good Things Happening


January was a pretty busy month for me. Lots of things getting set in motion for the upcoming months.

I've already written about the new volunteer opportunity. That's going pretty well. After a couple days of learning how to do stuff, I'm already working on the organization's next newsletter!

Early in the month, I had a follow-up with Genetics about my Joubert syndrome. I hadn't seen my doctor in quite a few years, so it was a bit fun to catch her up on everything, especially the conferences and appointment to the board. Since it had been a while, it was recommended that I go through some new testing to find my specific gene, which was okay because it only required one vial of blood this time.

Next came some new social opportunities. In the Fall, I decided to look for something else to do, socially, and found a science fiction/fantasy book club here in Ottawa which looked interesting. A few weeks ago I finally made it out to one of their meetings, and it was really fun! Fairly good book selection, nice people, and they meet at a good restaurant. After two meetings, I think I'll keep going!

I registered for The Canadian Organization for Rare Disorder's (CORD) annual conference which is being held here in Ottawa this March. I attended a conference four years ago along with one of the parents from the Joubert Foundation. It was a pretty interesting experience and a nice early step in all the disability stuff and advocacy I've been doing. This time, I'm going all on my own and as an official representative of the Joubert syndrome Foundation and Board! (Just writing that sentence is pretty cool!) Should be an experience.

And finally, more work-related stuff. The other day I met with one of the places I'm getting help from. First, they were very impressed with the volunteer position, so that was good. Then, they suggested that I look into research positions. Their reasons being that I'm already kind of dancing around it, with my background, interests, and experience, so why not just go for it? Sounded good to me, and I've already sent something off!

And that's it. Just some updates.

Cheers!

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